Rare Ireland

€178 of €10.000 raised
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Rare Ireland

25
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Donation Total: €50

We Support
We Advocate
We Understand

The voice for families
living with rare conditions in Ireland

who we are

The Story Of Rare Ireland

Rare Ireland was set up in 2017 by two mothers of daughters with rare chromosome disorders, Laura Egan and Louise O’Keeffe.

Rare Ireland was initially set up as a Facebook support group for parents of children and young adults living with rare conditions and was successful in obtaining charity status in February 2022.

What we do

How We Help

Latest News

Alan & Michelle embark on a journey to advocate for those affected by multiple sulfatase deficiency

Alan & Michelle embark on a journey to advocate for those affected by multiple sulfatase deficiency

Alan Finglas, alongside his wife Michelle, embarked on a journey to advocate for those affected

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A revolutionary treatment – dubbed the “most expensive drug in the world”

A revolutionary treatment – dubbed the “most expensive drug in the world”

A revolutionary treatment – dubbed the “most expensive drug in the world” – which will

Read More
Cold Water Dip

Cold Water Dip

Celebrate Rare Disease Day this February by joining us for our Rare Disease Day Cold

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Donate quickly and securely with Stripe

How it works: A Stripe window will open after you click the Donate Now button where you can securely make your donation. You will then be brought back to this page to view your receipt.

Rare Ireland

25
Donation Form

Donation Total: €50