Rugby ace James Lowe to open up about living with rare disease
September 17, 2025
Rugby Star James Lowe Opens Up About Living with Rare Disease Irish rugby international James Lowe is set to share
Stronger Together
Category: Uncategorized
Alan & Michelle embark on a journey to advocate for those affected by multiple sulfatase deficiency
May 16, 2024
Alan Finglas, alongside his wife Michelle, embarked on a journey to advocate for those affected by multiple sulfatase deficiency (MSD)
National Rare Disease Strategy 2025 – 2030
September 17, 2025
The National Rare Disease Strategy 2025 – 2030 sets out a vision to improve the lives of the estimated 300,000