Alan & Michelle embark on a journey to advocate for those affected by multiple sulfatase deficiency May 16, 2024 Alan Finglas, alongside his wife Michelle, embarked on a journey to advocate for those affected by multiple sulfatase deficiency (MSD) Read More
A revolutionary treatment – dubbed the “most expensive drug in the world” July 24, 2024 A revolutionary treatment – dubbed the “most expensive drug in the world” – which will give patients with a fatal Read More
Cold Water Dip February 9, 2025 Celebrate Rare Disease Day this February by joining us for our Rare Disease Day Cold Water Dips. Rare disease patients Read More