Alan & Michelle embark on a journey to advocate for those affected by multiple sulfatase deficiency May 16, 2024 Alan Finglas, alongside his wife Michelle, embarked on a journey to advocate for those affected by multiple sulfatase deficiency (MSD) Read More
A revolutionary treatment – dubbed the “most expensive drug in the world” May 15, 2024 A revolutionary treatment – dubbed the “most expensive drug in the world” – which will give patients with a fatal Read More
Rare Ireland Disability Open Day & Conference and Charity Ball 2024 April 4, 2021 Edit Post Rare Ireland held their annual conference and disability open day was held at the Shamrock Lodge Hotel in Read More