Rare Ireland

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Rare Ireland

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Rare Ireland Annual Conference
and Disability Information Day

Rare Ireland hosts an annual conference that brings together families affected by rare diseases, clinicians working in the field of rare diseases, and rare disease researchers. Our conference enables families to connect with each other, form friendships, and gain support. They can also seek information from clinicians and learn about the latest research being done to benefit the rare community. Bringing families, clinicians, and researchers together is highly beneficial, as it allows professionals to listen to the firsthand lived experiences of families. This helps them focus their research and care pathways on the needs of the rare community. Our conference aims to provide families with valuable information that can help improve their quality of life. To achieve this, we have included an information exhibition as a part of the event. This exhibition showcases exhibits from both national and local charities and support organisations that offer a range of valuable services and support to families of children with additional needs.

Conference and Charity Ball 2024

This October on the evening of our annual Conference, Rare Ireland are hosting the first ever Charity Ball in aid of our rare children and their families. 

The Charity Ball, including a drinks reception, entertainment, and with some surprises on the night!

Mark the date in your diary, and enjoy a night with family, friends, colleagues or clients.

We plan on a night to remember, with lots of fun and laughter for everyone.

Help us make a difference for our all our Rare families.

Date: October 18, 2024 Time: 6.30pm till Late

Venue: Shamrock Lodge Hotel, Athlone

Organiser: Rare Ireland  [email protected]

Conference 2023

Conference 2022